Damn, got my hopes up…
Question:
>Without the Enbrel, living in Whistler would be hell. This is a town that is >all about being physically active, with skiing and snowshoeing in the >winter, and boating, biking and hiking in the summer. If you’ve never heard >of the place check out www.whistler-blackcomb.com . It is a beautiful place.
You live in paradise, that is for sure. Not that I have ever been to Whistler, but I have certainly seen enough pictures. I feel that most of our province is like paradise. It is a beautiful place to live. Glad enbrel allows you to enjoy life. Rose
Response:
GO AWAY!
– Hide quoted text — Show quoted text -> " Sh*t, sh*t, sh*t!!! I’m now officially depressed and pissed off, both at the > disease and myself for getting my hopes up!! > Rebecca Ford" > You want a cure work for it..
Response:
"GO AWAY!" Have you told your arthritis that… We can do more than hope, but we need to band together and push for a cure. If not for yourself than your your kids….
Response:
"to see if that miracle has happened for us and to us. " Can’t say I ever seen a miracle on anybody… I have seen some very lucky people, but not what I would call a miracle…
Response:
Specialsearcher, I must say your reply to Rebecca was totally insensitive and rude!!! Perhaps in the future if you can’t be supportive or compassionate you would do well to just keep quiet!!! Sheesh!!! Donna G
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A story of love and how good life can be. A tale of a home in heaven where exercise is king. Oooh, take care of your dog because he can not stand to see you leave. Harv
Response:
> Specialsearcher, I must say your reply to Rebecca was totally > insensitive and rude!!! Perhaps in the future if you can’t be > supportive or compassionate you would do well to just keep quiet!!! > Sheesh!!! > Donna G
LOLOLOL Girls, girls now stop that. LOLOLOL or not. Harv
Response:
"Specialsearcher, I must say your reply to Rebecca was totally insensitive and rude!!! Perhaps in the future if you can’t be supportive or compassionate you would do well to just keep quiet!!! Sheesh!!! Donna G" A cure is what I want, but it wont happen unless we push for it. The only one besides us that might benefit from a cure is the insurance industry; even then, only if its cheap probably lol… So its up to us to push for it, dreaming about it wont make it happen.
Response:
" Sh*t, sh*t, sh*t!!! I’m now officially depressed and pissed off, both at the disease and myself for getting my hopes up!! Rebecca Ford" You want a cure work for it..
Response:
Feel better soon! It’s so discouraging when all symptoms are returning in no time after skipping injections. Nothing makes me realise how much Enbrel actually is helping me more than that. I’ve been off Enbrel for 10 days because of tonsillitis and can’t wait until the injection on Monday. Hope you’ll bounce back quickly. Nina – Hide quoted text — Show quoted text -> Why do I do this to myself? I’ve been doing fairly well in general, although > I suspect my thyroid is lacking again. But anyway, the RA has been good, so > good that I skipped an Enbrel dose, figuring it’d help my minor sinus > infection. Skipped two more, hoping that maybe I’m finally in that 10% who > have a real remission. Last shot was a week ago Monday morning. I’ve been > dragging energywise yesterday and today. Now my fingers are swelling and > achy and I’m getting that beginning pinprick of pain in my hips and > shoulders. Looks like an injection for dinner if I don’t want to be > completely incapacitated tomorrow. Damn, damn, damn!!!! I was kind of hoping > that with a new home in a new country, starting a new life I could trick my > body into being well. Sh*t, sh*t, sh*t!!! I’m now officially depressed and > pissed off, both at the disease and myself for getting my hopes up!! > Rebecca Ford
Response:
"to see if that miracle has happened for us and to us. " Can’t say I ever seen a miracle on anybody… I have seen some very lucky people, but not what I would call a miracle… ****somehow, it doesn’t surprise me that you would say that. kate
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"Specialsearcher, I must say your reply to Rebecca was totally insensitive and rude!!! Perhaps in the future if you can’t be supportive or compassionate you would do well to just keep quiet!!! Sheesh!!! Donna G" A cure is what I want, but it wont happen unless we push for it. The only one besides us that might benefit from a cure is the insurance industry; even then, only if its cheap probably lol… So its up to us to push for it, dreaming about it wont make it happen. ****you don’t have a clue! you want a cure for which form of arthritis? your blanket statement shows how clueless you are, as well as, rude and uncaring. somehow, i think you are a troll. kate
Response:
> sorry, Harv, but it’s not funny to me…and it’s not a " girls, girls" etc > thing…neither would it be a "boys, boys"…we are all adults. > Comments that do nothing to show support and give encouragement to a person > in pain is not acceptable to me. > donnah
Ok, you have a good point. I see what you are talking about now. Harv
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AMEN Donnah!!! I don’t think it’s particularly funny either! I think it is rude and uncalled for. This specialsearcher person has done the same thing on a number of occassions! Donna G
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Specialsearcher, that is fine to want a cure—heck, we ALL want a cure, but that still does not give one the right to respond rudely to another. This is, after all, a support group. Supporting one another is what we do and will continue to do until a cure is found!!! I stand by my earlier post that your response to Rebecca was rude and unnecessary!!! Donna G
Response:
I was staying out of it as I figured it was a troll and even feeling good, it’s not worth the waste of energy. Really, short of becoming a research scientist or having gobs of money and/or marrying into a pharmaceutical family, I’m not sure what I can do. — Rebecca Ford
– Hide quoted text — Show quoted text – > "Specialsearcher, I must say your reply to Rebecca was totally > insensitive and rude!!! Perhaps in the future if you can’t be > supportive or compassionate you would do well to just keep quiet!!! > Sheesh!!! > Donna G" > A cure is what I want, but it wont happen unless we push for it. The only > one > besides us that might benefit from a cure is the insurance industry; even > then, > only if its cheap probably lol… So its up to us to push for it, dreaming > about it wont make it happen. > ****you don’t have a clue! you want a cure for which form of arthritis? > your blanket statement shows how clueless you are, as well as, rude and > uncaring. somehow, i think you are a troll. > kate
Response:
why don’t you identify yourself? your pissy little comments are mean spirited.
– Hide quoted text — Show quoted text -> "GO AWAY!" > Have you told your arthritis that… > We can do more than hope, but we need to band together and push for a cure. If > not for yourself than your your kids….
Response:
sorry, Harv, but it’s not funny to me…and it’s not a " girls, girls" etc thing…neither would it be a "boys, boys"…we are all adults. Comments that do nothing to show support and give encouragement to a person in pain is not acceptable to me. donnah – Hide quoted text — Show quoted text -> Specialsearcher, I must say your reply to Rebecca was totally > insensitive and rude!!! Perhaps in the future if you can’t be > supportive or compassionate you would do well to just keep quiet!!! > Sheesh!!! > Donna G > LOLOLOL Girls, girls now stop that. LOLOLOL or not. > Harv
Response:
well said Donna. Who the heck is the annonymous searcher and I sure hope he/she finds a cure for a rude and bad attitude quickloy-that would indeed be a miracle. M – Hide quoted text — Show quoted text ->sorry, Harv, but it’s not funny to me…and it’s not a " girls, girls" etc >thing…neither would it be a "boys, boys"…we are all adults. >Comments that do nothing to show support and give encouragement to a person >in pain is not acceptable to me. >donnah > > Specialsearcher, I must say your reply to Rebecca was totally > > insensitive and rude!!! Perhaps in the future if you can’t be > > supportive or compassionate you would do well to just keep quiet!!! > > Sheesh!!! > > Donna G > LOLOLOL Girls, girls now stop that. LOLOLOL or not. > Harv
Response:
Thanks for all the replies. I actually got the shot in in time to stop a major flare from coming on. I’m a little stiff but I wised up in time. I’m lucky I can read my body well enough now to stop the bad pain before it starts. I’m also so damn lucky that the Enbrel kicks in so fast and works so well for me. I want to stay healthy and feeling good because our new town has so much to do and enjoy, and I want to be able to do it all. Without the Enbrel, living in Whistler would be hell. This is a town that is all about being physically active, with skiing and snowshoeing in the winter, and boating, biking and hiking in the summer. If you’ve never heard of the place check out www.whistler-blackcomb.com . It is a beautiful place. If Whistler and Vancouver get the 2010 Olympics you’ll be hearing much more about it. The bike trail system here is amazing. I’ve been going out 2-3 days a week towing my 4 year old behind me for an hour and a half ride. Three days a week I’m still doing water aerobics, although all by myself for now. I just got back from a family bike ride today so I really shouldn’t complain about my health since I am so capable. As far as our house goes, Harv, it’s beautiful. It’s a brand new house with hardwoods, stone and marble floors. We have a lot of exposed beams all done with reclaimed wood. Our top floor has a small den, the master suite and an amazing great room with cathedral ceiling and an enormous stone fireplace with views of the lake and mountains. We’ve got more bedrooms, a playroom and a games room on the other two floors. But the piece de resistance for an arthritic is the steam room in the spa which leads out to the hot tub with views all around. That’s how I’m dealing with any flares– my old little slice of heaven. We’re situated on a small lagoon that leads out to a glacier-fed lake, which does get warm enough for swims in the summer. We just bought a secondhand canoe and have been cruising around on it. Main problem is our golden retriever follows us as we go and doesn’t have the stamina to make it very far. Quite funny to see him swim to shore and proceed to run through all the lakefront yards trying to keep up with us! We’re also hoping to pick up an old laser sailboat or two and help get a small racing club going. All in all, I’ve got a damn good life here with two healthy kids and husband who loves me soI should just consider myself very lucky, RA or not. If anything, the disease is giving me a whole new appreciation for all that I’ve got. And living here will make me want to do as much as I can on the good days. So I’ll quite my griping about not being in a non-medicated remission and just enjoy the good things in life! (But thanks for listening. I knew you’d all understand.) — Rebecca Ford – Hide quoted text — Show quoted text -> Why do I do this to myself? I’ve been doing fairly well in general, although > I suspect my thyroid is lacking again. But anyway, the RA has been good, so > good that I skipped an Enbrel dose, figuring it’d help my minor sinus > infection. Skipped two more, hoping that maybe I’m finally in that 10% who > have a real remission. Last shot was a week ago Monday morning. I’ve been > dragging energywise yesterday and today. Now my fingers are swelling and > achy and I’m getting that beginning pinprick of pain in my hips and > shoulders. Looks like an injection for dinner if I don’t want to be > completely incapacitated tomorrow. Damn, damn, damn!!!! I was kind of hoping > that with a new home in a new country, starting a new life I could trick my > body into being well. Sh*t, sh*t, sh*t!!! I’m now officially depressed and > pissed off, both at the disease and myself for getting my hopes up!! > Rebecca Ford > Hi Rebecca, Actually it is very good that you have got this out of the > way. Nearly all of us have at one time or another felt so good that we > thought we could just skip our medicine. Wrong…. I really hope that > your medicine kicks back in again but there is no guaranty that it > will. Our immune system works best with all things remaining constant. > If we are taking our medicine and doing as we should and something > tragic enter our life and our stress levels go way up,,,,a flare could > result. It may not but it could and be understandable. > A move in itself can be very stressful while we do not realize the > stress is taking place and can be happy about it. Please give us an > update on how you are and when you feel like,, tell us all about your > new home. > Harv
Response:
(((Rebecca))) Kate’s reply is so true… praying that you feel better soon… donnah
– Hide quoted text — Show quoted text -> i’m sorry you are hurting, both physically and emotionally. (((((hugs)))))) > be gentle with and forgive yourself, rebecca. nobody wants these diseases, > the deterioration and the restructuring of our lives that come with them. > everybody wants to believe and needs to believe we might just get the chance > to return to what should be ”normal” and ”comfortable” and ”familiar”. > it is ok to love yourself enough to want that for yourself, rebecca. > sometimes, it is just too irresistable and very human to test the moment, to > see if that miracle has happened for us and to us. unfortunately, that > miracle doesn’t always happen for everybody. but, maybe that’s because > that particular one isn’t the miracle that was intended for each and every > one of us; and maybe that’s because there is a different kind of miracle > that we aren’t looking for, or hoping for, that IS in store for each of > us—something even more important and valuable to each of us, individually, > that is individualized and specific to each of our lives and that we aren’t > aware of just yet. who knows? wishing you’d feel better soon. > kate > Why do I do this to myself? I’ve been doing fairly well in general, although > I suspect my thyroid is lacking again. But anyway, the RA has been good, so > good that I skipped an Enbrel dose, figuring it’d help my minor sinus > infection. Skipped two more, hoping that maybe I’m finally in that 10% who > have a real remission. Last shot was a week ago Monday morning. I’ve been > dragging energywise yesterday and today. Now my fingers are swelling and > achy and I’m getting that beginning pinprick of pain in my hips and > shoulders. Looks like an injection for dinner if I don’t want to be > completely incapacitated tomorrow. Damn, damn, damn!!!! I was kind of hoping > that with a new home in a new country, starting a new life I could trick my > body into being well. Sh*t, sh*t, sh*t!!! I’m now officially depressed and > pissed off, both at the disease and myself for getting my hopes up!! > Rebecca Ford
Response:
Sue E.
– Hide quoted text — Show quoted text -> Why do I do this to myself? I’ve been doing fairly well in general, although > I suspect my thyroid is lacking again. But anyway, the RA has been good, so > good that I skipped an Enbrel dose, figuring it’d help my minor sinus > infection. Skipped two more, hoping that maybe I’m finally in that 10% who > have a real remission. Last shot was a week ago Monday morning. I’ve been > dragging energywise yesterday and today. Now my fingers are swelling and > achy and I’m getting that beginning pinprick of pain in my hips and > shoulders. Looks like an injection for dinner if I don’t want to be > completely incapacitated tomorrow. Damn, damn, damn!!!! I was kind of hoping > that with a new home in a new country, starting a new life I could trick my > body into being well. Sh*t, sh*t, sh*t!!! I’m now officially depressed and > pissed off, both at the disease and myself for getting my hopes up!! > Rebecca Ford
Response:
- Hide quoted text — Show quoted text – > Why do I do this to myself? I’ve been doing fairly well in general, although > I suspect my thyroid is lacking again. But anyway, the RA has been good, so > good that I skipped an Enbrel dose, figuring it’d help my minor sinus > infection. Skipped two more, hoping that maybe I’m finally in that 10% who > have a real remission. Last shot was a week ago Monday morning. I’ve been > dragging energywise yesterday and today. Now my fingers are swelling and > achy and I’m getting that beginning pinprick of pain in my hips and > shoulders. Looks like an injection for dinner if I don’t want to be > completely incapacitated tomorrow. Damn, damn, damn!!!! I was kind of hoping > that with a new home in a new country, starting a new life I could trick my > body into being well. Sh*t, sh*t, sh*t!!! I’m now officially depressed and > pissed off, both at the disease and myself for getting my hopes up!! > Rebecca Ford
Hi Rebecca, Actually it is very good that you have got this out of the way. Nearly all of us have at one time or another felt so good that we thought we could just skip our medicine. Wrong…. I really hope that your medicine kicks back in again but there is no guaranty that it will. Our immune system works best with all things remaining constant. If we are taking our medicine and doing as we should and something tragic enter our life and our stress levels go way up,,,,a flare could result. It may not but it could and be understandable. A move in itself can be very stressful while we do not realize the stress is taking place and can be happy about it. Please give us an update on how you are and when you feel like,, tell us all about your new home. Harv
Response:
i’m sorry you are hurting, both physically and emotionally. (((((hugs)))))) be gentle with and forgive yourself, rebecca. nobody wants these diseases, the deterioration and the restructuring of our lives that come with them. everybody wants to believe and needs to believe we might just get the chance to return to what should be ”normal” and ”comfortable” and ”familiar”. it is ok to love yourself enough to want that for yourself, rebecca. sometimes, it is just too irresistable and very human to test the moment, to see if that miracle has happened for us and to us. unfortunately, that miracle doesn’t always happen for everybody. but, maybe that’s because that particular one isn’t the miracle that was intended for each and every one of us; and maybe that’s because there is a different kind of miracle that we aren’t looking for, or hoping for, that IS in store for each of us—something even more important and valuable to each of us, individually, that is individualized and specific to each of our lives and that we aren’t aware of just yet. who knows? wishing you’d feel better soon. kate
Why do I do this to myself? I’ve been doing fairly well in general, although I suspect my thyroid is lacking again. But anyway, the RA has been good, so good that I skipped an Enbrel dose, figuring it’d help my minor sinus infection. Skipped two more, hoping that maybe I’m finally in that 10% who have a real remission. Last shot was a week ago Monday morning. I’ve been dragging energywise yesterday and today. Now my fingers are swelling and achy and I’m getting that beginning pinprick of pain in my hips and shoulders. Looks like an injection for dinner if I don’t want to be completely incapacitated tomorrow. Damn, damn, damn!!!! I was kind of hoping that with a new home in a new country, starting a new life I could trick my body into being well. Sh*t, sh*t, sh*t!!! I’m now officially depressed and pissed off, both at the disease and myself for getting my hopes up!! Rebecca Ford
Response:
Why do I do this to myself? I’ve been doing fairly well in general, although I suspect my thyroid is lacking again. But anyway, the RA has been good, so good that I skipped an Enbrel dose, figuring it’d help my minor sinus infection. Skipped two more, hoping that maybe I’m finally in that 10% who have a real remission. Last shot was a week ago Monday morning. I’ve been dragging energywise yesterday and today. Now my fingers are swelling and achy and I’m getting that beginning pinprick of pain in my hips and shoulders. Looks like an injection for dinner if I don’t want to be completely incapacitated tomorrow. Damn, damn, damn!!!! I was kind of hoping that with a new home in a new country, starting a new life I could trick my body into being well. Sh*t, sh*t, sh*t!!! I’m now officially depressed and pissed off, both at the disease and myself for getting my hopes up!! Rebecca Ford
Response:
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